Home
Home |
|
|
|
|
|
|
|
|
ON OAHU: Asthma Support Group Provides support, programs and information to parents of children with asthma and other lung conditions. Autism Society of Hawaii Meets every 3rd Tuesday of the month from 6:30 p.m. - 8:00 p.m. Contact Naomi Grossman for location. Autism Speaks (formerly Cure Autism Now) A network of parents and professionals dedicated to funding biomedical research for autism spectrum disorders, raising public awareness, and bringing hope to families. Brain Injury Association
of Hawaii Support group meetings monthly on the 2nd Wednesday
of the month at 6:30 p.m. and educational meetings on the 3rd Wednesday at 7:00 p.m. at the Rehab Hospital of the Pacific.
For a current listing of CCCs
that have regular parent support group meetings, contact the
Community Children's Council Office 1177 Alakea St., B100, Honolulu,
Hawaii 96813. Provides statewide support and assistance to the Community Children's Councils (local community groups formed to help develop and evaluate the system of care mandated by the Felix Consent Decree). Also facilitates information and communication exchanges between the community and State agencies. Epilepsy Foundation of Hawaii Offers a "Keiki Club" --a support group for children with epilepsy and their families and a Teen/Young Adult Network. Epilepsy Grassroots Support
Group Offers an epilepsy support group that is run by volunteers and meets the second Wednesday of every other month from 7:00 - 8:45 p.m. at Radio Shack, Pearlridge Shopping Center in Honolulu. Family Support Meeting for Families with Children who have any degree of Hearing Loss Offers to parent-to-parent support every 2nd Sunday from 6:30 p.m. - 8:00 p.m. followed by Signing & Communication Support from 8:00 p.m. - 8:30 p.m. at Kapiolani Hospital, 2nd Floor, Conference Room A (inside the cafeteria). Hawaii Down Syndrome Congress,
HI Chapter Meets periodically on Saturdays from 10:00 a.m. to noon at 710 Green Street (Easter Seals) in Honolulu. Call for dates. Also publishes a newsletter for families. Hawaii Families As Allies Provides support and outreach to parents of children and adolescents who have emotional or behavior challenges. Hawaii Foster Parent Association Provides information, training and support for foster/adoptive parents, including those who are caring for children with disabilities. Provides a quarterly newsletter and sponsors an annual conference. Hemophilia Parent Support Provides parent-to-parent matching for parents whose children have hemophilia and activities for patients and families for networking and support. HUGS (Help, Understanding
& Group Support) Provides support and family services to parents of children birth to 21 diagnosed with having a life threatening illness or considered to be medically fragile. Provides service to the whole family. Kardiac Kids Parent Support
Group Offers education and support to parents whose children have heart conditions. Meets every 2nd Tuesday from 6:30 p.m. - 9 p.m. at Kapiolani Medical Center. Military Parents Support
Group Offers support groups for military parents of children with autism. Cal for more information. **The Exceptional Family Member
Program has a website that explains the Exceptional Family Member
Program and provides a context for assisting families with special
needs. Muscular Dystrophy Association Offers support groups for individuals with muscular dystrophy or other neuro-muscular conditions and their families. Support groups have been established on Oahu,Kauai, Maui and the Big Island. The Oahu General Support Group meets the 2nd Friday of every month and the ALS Group meets the 2nd Tuesday of every month. National Alliance for the
Mentally Ill Provides for Alliance consumers, family members and interested community members whose lives are affected by neuro-biological disorders such as schizophrenia, manic depression, and major depression. Obsessive-Compulsive Disorder
Support Group Meets the second Saturday of each month at 1:00 p.m. at the Star of the Sea Church (4470 Aliikoa Street). Call before attending a meeting. Spina Bifida Support Network Provides parent-to-parent support and family gatherings for families of children and adults with spina bifida. Talk About Curing Autism Hawaii (TACA) Holds informational group meetings for parents and interested professionals the last Monday of the month at 7:00 p.m. at Kaimuki Christian Church (1117 Koko Head Ave.) Tourette Syndrome Parent
Support Provides a parent-to-parent match for information and support. "We Care" Support Group - ACSEFMD Issue specific support groups for any military family in the Exceptional Family Member Program: 1) 1st autism support group meets the 2nd Wednesday of each month, 5:30 p.m. - 8:00 p.m. at the Schofield Main Post Chapel. 2) 2nd autism support group meets the 1st Tuesday of each month, 5:30 p.m. - 8:00 p.m. at the Aliamanu Military Reservation. ON KAUAI: Kauai Autism/PDD Family Support Group Provides support & education to parents and caregivers living with persons with autism spectrum. Meets on the 3rd Thursday of the month at 6:00 p.m. at the Easter Seals Conference Room in Lihue. Kauai Parent Support Group Provides support & education to parents to enable them to be effective partners in the IEP process. Meets on the 1st Tuesday of the month at 6:00 p.m. at the Lihue Public Library. ON MAUI: Autism/PDD Family Support
Group Meets every other month (except November and December) on the 4th Saturday at Cameron Center, Conference Room #1, 95 Mahalani Street, Kahului, Maui. Open to direct care providers and families of children with autism spectrum disorders, pervasive developmental disorders and other neuro-developmental disorders. Mental Health America-Maui County Provides advocacy through children/youth and adult committees to improve mental health services. Information and referral. Also provides support groups and classes. Keiki Diabetes Support Group Provides support for any youth up to age 18 with diabetes and their family members. Call for meeting dates and locations. SELF HELP GROUP FOR PERSONS WITH DISABILITIES Self-Advocacy Advisory Council (SAAC) Offers a network of individuals with developmental disabilities aimed at becoming partners in planning, developing and implementing policies and programs for persons with developmental disabilities. United Self Help Offers a variety of support groups on different days and at different locations for adults with depression, schizophrenia, anxiety and other categories of mental illness. SIBLING SUPPORT GROUPS (for Brothers & Sisters) ON OAHU: Easter Seals of Hawaii Sibshops Brothers and sisters 6-12 of siblings with disabilities meet six times a year, usually on the 1st Saturday of the month from 11:00 a.m. - 2:00 p.m. Cost is $10 per child per Sibshop and includes lunch and all activities. Call to register. CONSUMER SELF-HELP GROUP ON OAHU: United Self Help Offers a variety of support groups on different days and at different locations for adults with depression, schizophrenia, anxiety and other categories of mental illness. |