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ON OAHU: Asperger's Syndrome Support Group A family support group for individuals with Asperger's Syndrome. The young adult group covers 18 through 30 years but families of younger children are welcome to attend. Usually meets on the thrid Sunday of the month at 1:00 p.m. but please call for location. Asthma Support Group Provides support, programs and information to parents of children with asthma and other lung conditions. Autism Society of Hawaii Meets every 3rd Tuesday of the month from 6:30 p.m. - 8:00 p.m. Contact Naomi Grossman for location. Autism Speaks (formerly Cure Autism Now) A network of parents and professionals dedicated to funding biomedical research for autism spectrum disorders, raising public awareness, and bringing hope to families. Brain Injury Association
of Hawaii Support group meetings monthly on the 2nd Wednesday
of the month at 6:30 p.m. and educational meetings on the 3rd Wednesday at 7:00 p.m. at the Rehab Hospital of the Pacific.
For a current listing of CCCs
that have regular parent support group meetings, contact the
Community Children's Council Office 1177 Alakea St., B100, Honolulu,
Hawaii 96813. Provides statewide support and assistance to the Community Children's Councils (local community groups formed to help develop and evaluate the system of care mandated by the Felix Consent Decree). Also facilitates information and communication exchanges between the community and State agencies. Down Syndrome Ohana Offers a support group for families enrolled in the program. The group meets the fourth Monday of each month from 8:30 a.m. - 12:30 p.m. at the ASYMCA at building 3074 Reed Road. Meet and network with other members and offer suggestions to assist in making the program more functional. Childcare provided by reservation by the prior Monday. EFMP Support Group - Marine Corps Base Hawaii Offers a support group for families enrolled in the program. The group meets the fourth Monday of each month from 8:30 a.m. - 12:30 p.m. at the ASYMCA at building 3074 Reed Road. Meet and network with other members and offer suggestions to assist in making the program more functional. Childcare provided by reservation by the prior Monday. Epilepsy Foundation of Hawaii Offers a "Keiki Club" --a support group for children with epilepsy and their families and a Teen/Young Adult Network. Epilepsy Grassroots Support
Group Offers an epilepsy support group that is run by volunteers and meets the second Wednesday of every other month from 7:00 - 8:45 p.m. at Radio Shack, Pearlridge Shopping Center in Honolulu. Family Support Meeting for Families with Children who have any degree of Hearing Loss Offers to parent-to-parent support every 2nd Sunday from 6:30 p.m. - 8:00 p.m. followed by Signing & Communication Support from 8:00 p.m. - 8:30 p.m. at Kapiolani Hospital, 2nd Floor, Conference Room A (inside the cafeteria). Hawaii Down Syndrome Congress,
HI Chapter Meets periodically on Saturdays from 5:30 p.m. to 7:00 p.m. at 94-155 Leoole Stree, Suite A200, Waipahu. Call for dates. Also publishes a newsletter for families. Hawaii Families As Allies Provides support and outreach to parents of children and adolescents who have emotional or behavior challenges. Hemophilia Parent Support Provides parent-to-parent matching for parents whose children have hemophilia and activities for patients and families for networking and support. HUGS (Help, Understanding
& Group Support) Provides support and family services to parents of children birth to 21 diagnosed with having a life threatening illness or considered to be medically fragile. Provides service to the whole family. It Takes An Ohana Provides information, training and support for foster/adoptive parents, including those who are caring for children with disabilities. Provides a quarterly newsletter and sponsors an annual conference. Kardiac Kids Parent Support
Group Offers education and support to parents whose children have heart conditions. Meets every 2nd Friday from 6:30 p.m. - 9 p.m. at Kapiolani Medical Center. KMC Cancer Connection Support Group Offers a support group to families who have been touched by childhood cancer. Meets the last Thursday of the month from 6:00 p.m. - 8:00 p.m. at Kapiolani Medical Center's Conference Room. (inside the Dining Room). Military Parents Support
Group Offers support groups for military parents of children with autism. Cal for more information. **The Exceptional Family Member
Program has a website that explains the Exceptional Family Member
Program and provides a context for assisting families with special
needs. Muscular Dystrophy Association Offers support groups for individuals with muscular dystrophy or other neuro-muscular conditions and their families. Support groups have been established on Oahu,Kauai, Maui and the Big Island. Dates and locations vary for each of the support groups so call or email for dates. National Alliance for the
Mentally Ill Provides for Alliance consumers, family members and interested community members whose lives are affected by neuro-biological disorders such as schizophrenia, manic depression, and major depression. Neonatal Intensive Care Unit Graduates "Beyond the NICU Doors Hawaii" Offers Hawaii's first NICU graduate ohana support group. Monthly meetings can be found on the website. Obsessive-Compulsive Disorder
Support Group Meets the second Saturday of each month from 11:00 a.m. to 1:00 p.m. at the Star of the Sea Church (4470 Aliikoa Street). Call before attending a meeting. Talk About Curing Autism Hawaii (TACA) Holds informational group meetings for parents and interested professionals the 2nd Monday of the month at 6:45 p.m. at Kaimuki Christian Church (1117 Koko Head Ave) 2nd floor Santuary. Special Needs Support Group (EFMP) Issue specific support groups (Autism, Down Syndrome, Share Support) for any military family in the Exceptional Family Member Program. Monthly meetings are held from 5:00 p.m. (includes dinner) to 7:30 p.m. at Schofield Barracks. ON KAUAI: ASK - Autism Support for Kauai Meetings are held bi-monthly at various locations around the island, depending on availability of meeting rooms. The website has the date and location of the meeting along with many other resources available to the keiki on Kauai. Kauai Parent Support Group Provides support & education to parents to enable them to be effective partners in the IEP process. Meets on the 1st Tuesday of the month at 6:00 p.m. at the Lihue Public Library. ON MAUI: Autism/PDD Family Support
Group Meets every other month (except November and December) on the 4th Saturday at Cameron Center, Conference Room #1, 95 Mahalani Street, Kahului, Maui. Open to direct care providers and families of children with autism spectrum disorders, pervasive developmental disorders and other neuro-developmental disorders. Mental Health America-Maui County Provides advocacy through children/youth and adult committees to improve mental health services. Information and referral. Also provides support groups and classes. SELF HELP GROUP FOR PERSONS WITH DISABILITIES Self-Advocacy Advisory Council (SAAC) Offers a network of individuals with developmental disabilities aimed at becoming partners in planning, developing and implementing policies and programs for persons with developmental disabilities. United Self Help Offers a variety of support groups on different days and at different locations for adults with depression, schizophrenia, anxiety and other categories of mental illness.
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