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September 2002 Issue


    Articles include:

    PROGRAM DESCRIPTION

    SPIN is co-sponsored by the Disability & Communication Access Board and the Special Education Section of the Department of Education. Services include a phone line for information referral and support, a quarterly newsletter, an annual conference and community workshops. Guiding SPIN is our Advisory Committee: Ruth Akiona, Maggie Baxter, Mike Fahey, Amy Hogan, Laura Kealaiki, Steve Laracuente, Donna McLanahan, Scott O'Brien, Christina Pilkington, Millie Rogers, & Richele Thornburg

    SPIN
    919 Ala Moana Blvd., # 101
    Honolulu, Hawaii 96814

    PHONE
    586-8126
    Enterprise 5270

    FAX
    586-8129

    E-MAIL
    accesshi@aloha.net

    WEB
    www.spinhawaii.org

    THE OCEAN OF POTENTIALITY SUMMER CAMP

    The Ocean of Potentiality, Science & Technology Camp once again provided a
    successful camping experience for 35 youth this past summer. Thanks to the many volunteers and supporters, including Navy and Marine personnel, campers with disabilities were able to actively participate in in-depth and hands-on activities. Campers explored the concepts and tools of measuring and observing weather, learned about family values and the Hawaiian culture, tested their ideas about wind with kites, bubbles and wind vanes, and much more.
    Mentoring and taking responsibility were also an important aspect of the camp. Junior counselors (past campers who have been promoted) formed a special support component for both campers and counselors. They learned that everyone is called to give back some of what they have received.
    More camps are being planned for next year. Volunteers are needed! If you are interested in participating as a camper or a volunteer, please contact the Sea of Dreams Foundation at (808) 695-5877.

    4th Annual BUDDY WALK

    The Buddy Walk celebrates October "National Down Syndrome Awareness Month" and is sponsored by the National Down Syndrome Society, Hawaii Down Syndrome Congress, schools and organizations. The walk will be held on October 20, 2003 and begin at the Kakaako Waterfront Park. Registration is from 9:00 a.m. - 10:30 a.m. and the walk starts at 11:00 a.m.
    Brickwood Galuteria will be emceeing this fun-filled day. Bring a dish to share and your own drinks and enjoy display booths from local agencies, character appearances, Bocce Ball and other fun games for the kids. If you can help, please call Cheryl at 672-6444.
    The day's festivities will also include the presentation of awards to individuals/organizations who have done outstanding work in helping children with disabilities. Deadline for nominations is October 1st. If your child has a talent they would like to share at the Buddy Walk, contact Connie at 949-1999 or e-mail: hawaiidownsyndrome.com.

    Catholic Family Charities

    Na 'Ohana Pulama Program
    Families of Light and NourishmentThere are many children in Hawaii who for one reason or another, cannot live with their parents. They may be having problems at school, at home and/or in the community. These youth need someone to help them back on the right track. They need support and guidance in a home setting.
    If you have room in your home and your heart you can become an "Ohana Pulama, a "family of light and nourishment".
    For more information on foster parenting call 535-0101.

    PO'OHALA INFORMATION PROGRAM

    The Po'ohala Council, a project of the Developmental Disabilities Council, has created a new information program that will provide basic information on services available to support adults with developmental disabilities. Trained volunteers will be able to assist families and individuals to identify service needs, so they can make better decisions with core information about financial support, employment training, medical and dental care, housing, transportation, legal services, technology and recreation, as well as their rights and responsibilities.
    The speakers, using a unique visual aid, are available to go to groups of families and other interested persons and give their one-hour presentations as part of the regular meeting. A small amount of money (stipend) is available for family members, consumers, and volunteer advocates.
    To arrange for a speaker for your group, call the Developmental Disabilities Council Office at 808-586-8100 or e-mail: poohalaproject@netscape.net. The Developmental Disabilities Council and the Po'ohala Council offices are located at 919 Ala Moana Blvd., Suite 113, Honolulu, 96814.

    CAMA AAC WORKSHOP

    The Communication Aid Manufacturers Association (CAMA) is sponsoring an assistive technology and augmentative/alternative communication (AAC) workshop on October 7, 2002 at the Waikiki Beach Marriott Resort (formerly the Hawaiian Regent Hotel). The workshop is designed to help participants learn about the latest in assistive technology innovations.
    Pre-registration is $35 for families of direct consumers and full-time students and $65 for professionals. On-site registration is $90 for professionals.
    Complete information and on-line registration is available at www.aacproducts.org, or contact Chris Murin, Workshop Coordinator, at 1-800-441-2262.

    FAMILY LEADERSHIP ACADEMIES
    Easter Seals of Hawaii and Hawaii Families As Allies are conducting 2-day leadership academies for parents of children and adolescents with special needs. Topics to be covered include an overview of Felix, IDEA, 504, developing negotiation and communication skills, the impact of emotional/behavioral disorders and coping strategies, and more.
    9/28-29 Easter Seals Hawaii 10/26-27 Hilo DOE Annex
    12/7-8 Easter Seals Hawaii
    For more information contact Nicole at 536-1015 or Yvonne at 487-0514, and in Hilo call Carmen at 933-0640.

    CALENDAR OF EVENTS

    Exceptional Family Member Program Workshops
    For locations and times call 655-2303.
    9/4 Disability Awareness
    9/16 Making Choices
    9/18 How to be Your Best Advocate
    9/19 Securing Support
    9/23 Understanding Vocational Rehab Services
    9/26 Section 504
    9/30 Americans with Disabilities Act
    9/30 IDEA & Chapter 56 - call LDAH at 536-9684
    ***
    AWARE Workshops
    For locations and times call 536-9684
    9/10, 10/2, Development of the IEP
    10/8, 10/09
    9/17 Development of the IEP-Part 2
    9/24 Chapter 56
    10/1, 10/3, Understanding Evaluations
    10/10
    10/7 IDEA/Chapter 56
    10/19 IDEA (Kauai)
    ***
    9/21 Annual Foster Parent Care Conference Sheraton Waikiki
    Call 263-0920, toll-free 877-775-4400

    9/21 Sibshop Movie Night -Easter Seals Hawaii
    Contact Nicole at 526-1015

    9/23 Pediatric Brain Injury Family Support Meeting
    Contact Helen at 277-0101

    9/27 Island Skill Gathering Open House
    (assistive technology demo, displays & more)
    Call Wally at 732-4622

    10/4 Leadership Symposium & Annual Early Childhood Conference
    10/5 Contact Kathy at 942-4708 or haeyc@aloha.net

    10/12 Beyond the Blues Festival- 'A Celebration of Life'
    Mental Health Association at 521-1846.
    10/26 "Fostering Motivation, Hope & Resilience in Children with Learning Difficulties"
    Call 538-7007 or info@hibida.org

    4/12 2003 SPIN Conference (UH Campus Center)

    Hungry for ALPHABET SOUP? Try a hearty serving of ACRONYMS

An acronym is a shortcut for a string of words that go together. It is usually formed by taking the first letters of the words and capitalizing them. SPIN (Special Parent Information Network) is an acronym too. Here are some common acronyms that you may wish to add to your menu.

Department of Education
AT Assistive Technology
BOE Board of Education
CAS Complex Area Superintendent
CBI Community Based Instruction
DES District Education Specialist
DTT Discrete Trial Training
EA Educational Assistant
EPSDT Early & Periodic Screening Diagnosis and Treatment
ESY Extended School Year
FAPE Free Appropriate Public Education
FBA Functional Behavior Assessment
FERPA Family Education Rights & Privacy Act of 1974
GED General Educational Development
IDEA Individuals with Disabilities Education Act
IEP Individualized Education Program
ISPED Integrated Special Education System (SpEd Database)
MP Modification Plan
PBS Positive Behavior Supports
PLEP Present Levels of Educational Performance
RISE Retraining in Special Education
RT Resource Teacher
SEAC Special Education Advisory Council
SEVR Special Education Vocational Rehabilitation Program
SSC Student Services Coordinator
SST Student Support Team
TDD/TTY Telecommunication Device for the Deaf/Text Teletype

Department of Health

CAMHD Child & Adolescent Mental Health Division
CASSP Child & Adolescent Service System Program
CCC Community Children's Council
CIL Center for Independent Living
CSHNB Children with Special Health Needs Branch
CSP Coordinated Service Plan
DCAB Disability & Communication Access Board
DDD Developmental Disabilities Division
DSM/IV Diagnostic Statistical Manual (Fourth Edition)
FGC Family Guidance Center
IFSP Individualized Family Support Plan
ISP Individualized Service Plan
MTP/MP Master Treatment Plan
PICL Partnerships in Community Living
QUEST Quality Care, Universal Access, Efficient Utilization, Stabilize Cost, Transformation (DHS Medical Insurance)
SCHIP State Children's Health Insurance Program
SSI Supplemental Security Income
WIC Women, Infants & Children(Nutritional Program)